REFERENCE TITLE: DHS; stroke; treatment information; registry |
State of Arizona House of Representatives Fifty-third Legislature First Regular Session 2017
|
HB 2190 |
|
Introduced by Representative Cobb
|
AN ACT
Amending section 36‑133, Arizona Revised Statutes; amending title 36, chapter 1, article 2, Arizona Revised Statutes, by adding section 36‑133.01; relating to the department of health services.
(TEXT OF BILL BEGINS ON NEXT PAGE)
Be it enacted by the Legislature of the State of Arizona:
Section 1. Section 36-133, Arizona Revised Statutes, is amended to read:
36-133. Central statewide chronic disease surveillance system; immunity; confidentiality; violation; classification
A. A central statewide chronic disease surveillance system is established in the department. Diseases monitored in the surveillance system shall include cancer, birth defects and other chronic diseases required by the director to be reported to the department.
B. The department, in establishing the surveillance system, shall:
1. Provide a chronic disease information system.
2. Provide a mechanism for patient follow‑up.
3. Promote and assist hospital cancer registries.
4. Establish and maintain a statewide stroke registry to compile information and statistics pursuant to section 36‑133.01 concerning the treatment of patients who suffer from strokes.
4. 5. Improve the quality of information gathered relating to the detection, diagnosis and treatment of patients with cancer, birth defects and other diseases included in the surveillance system.
5. 6. Monitor the incidence patterns of diseases included in the surveillance system.
6. 7. Pursuant to rules adopted by the director, establish procedures for reporting diseases included in the surveillance system.
7. 8. Identify population subgroups at high risk for cancer, birth defects and other diseases included in the surveillance system.
8. 9. Identify regions of this state that need intervention programs or epidemiological research, detection and prevention.
9. 1o. Establish a data management system to perform various studies, including epidemiological studies, and to provide biostatistic and epidemiologic information to the medical community relating to diseases in the surveillance system.
C. A person who provides a case report to the surveillance system or who uses case information from the system authorized pursuant to this section is not subject to civil liability with respect to providing the case report or accessing information in the system.
D. The department may authorize other persons and organizations to use surveillance data:
1. To study the sources and causes of cancer, birth defects and other chronic diseases.
2. To evaluate the cost, quality, efficacy and appropriateness of diagnostic, therapeutic, rehabilitative and preventive services and programs related to cancer, birth defects and other chronic diseases.
E. The department of health services and the Arizona early intervention program in the department of economic security may use surveillance data to notify the families of children with birth defects regarding services that are available to them and provide these families with information about organizations that provide services to these children and their families.
F. Information collected on individuals by the surveillance system that can identify an individual is confidential and may be used only pursuant to this section. A person who discloses confidential information in violation of this section is guilty of a class 3 misdemeanor.
Sec. 2. Title 36, chapter 1, article 2, Arizona Revised Statutes, is amended by adding section 36-133.01, to read:
36-133.01. Statewide stroke registry; requirements; annual report
A. The department shall Establish and maintain a statewide stroke registry to compile information and statistics concerning the treatment of patients who suffer from strokes in this state.
B. The information and statistics compiled on stroke care in this state shall align with the consensus metrics prescribed by the centers for disease control and prevention's Paul Coverdell national acute stroke registry, the joint commission, the American heart association and the American stroke association.
C. The stroke registry shall use the data management platform established by the American heart association and the American stroke association or a similar data management platform that has substantially equivalent security standards for the data.
D. The department shall require comprehensive stroke centers and primary stroke centers and shall encourage acute stroke ready hospitals and emergency medical services agencies to report data consistent with nationally recognized guidelines on the treatment of individuals who suffer from confirmed strokes in this state.
E. The department shall compile an annual report concerning the operation and use of the stroke registry and the data collected by the registry and encourage medical facilities, health care providers and emergency medical services providers to share information and data concerning the treatment of patients who suffer from strokes to improve the quality of care for those patients in this state and facilitate the sharing and analysis of the information and data gathered pursuant to this section.