ARIZONA HOUSE OF REPRESENTATIVES Fifty-sixth Legislature Second Regular Session
	Senate: HHS DPA 7-0-0-0 | APPROPS DP 7-2-1-0 | 3^rd Read 24-4-2-0 House: HHS DP 9-1-0-0

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SB 1020: newborn screening; Duchenne muscular dystrophy

Sponsor: Senator Shope, LD 16

Committee on Appropriations

Overview

Requires the Arizona Department of Health Services (DHS) to add Duchenne muscular dystrophy to the state's newborn screening panel and contains an effective date.

History

The Director of DHS is required to establish a newborn screening program to ensure that the testing for congenital disorders and the reporting of hearing test results are conducted in an effective and efficient manner. The newborn screening program must include all congenital disorders that are included on the recommended uniform screening panel (RUSP) adopted by the Secretary of the U.S. Health & Human Services (HHS) for both core and secondary conditions. 

Beginning January 1, 2022, disorders that are added to the core and secondary conditions list of the RUSP must be added to this state's newborn screening panel within two years after their addition to the RUSP. The newborn screening program must include an education program for the general public, the medical community, parents and professional groups. The DHS Director must designate the State Laboratory as the only testing facility for the program, except that the DHS Director may designate other laboratory testing facilities for conditions or tests added to the newborn screening program on or after July 24, 2014 (A.R.S. § 36-694).

The State Laboratory screens every newborn in Arizona twice, once at 24-36 hours of age and again at 5-10 days old, for 35 different conditions, including but not limited to sickle cell anemia, cystic fibrosis, hearing differences and congenital heart defects (DHS).

Provisions

1. Requires DHS, in addition to the congenital disorders added to the newborn screening panel, to add Duchene muscular dystrophy to the states newborn screening panel.        (Sec. 1)

2. Requires the DHS Director, within 10 days after the date that Duchenne muscular dystrophy is added to the RUSP, to notify the Director of Legislative Council in writing. (Sec. 2)

3. Makes effective on the earlier of:

a) October 1, 2026; or

b) two years from the date Duchenne muscular dystrophy is added to the RUSP adopted by the U.S. HHS. (Sec. 2)

4. Makes technical and conforming changes. (Sec. 1)

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8.                   SB 1020

9. Initials AG/ KT    Page 0 Appropriations

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